One of my friends got an official diagnosis (from a PH specialist) of exercise induced PH. I sent her a copy of the Survival Guide. The book helped me understand what PH means and how to deal with the rare disease.
After some searching, I found my guide in plain sight where I would have it handy. My copy, the third edition, was updated in March 2008. Much progress has been made since then. A couple more meds got FDA approval (one of which I use -- Tyvaso) and clinical trials are under way for at least a couple more. The basic information in my 3-year-old guide still functions as a great reference. Comprehensive information all in one place and well-organized, every patient and caregiver should have the guide.
During my search for the PH guide, I left the coat closet door open. The boys are not allowed in this closet, so an open door meant exploration time. There are books lined up two deep across the one shelf at the top of the closet. Not ones to leave any area unchecked, Pogo made the leap from the top of the cat tree beside the closet door to the shelf. The books cascaded from the shelf along with a frightened Pogo. Less than a minute later he meowed from the shelf again. King of the mountain.
Pogo also discovered his "bird" and brought it to me. He has not seen his bird in at least a couple of months and he went crazy, which is why the bird was in the closet in the first place. The bird has about lost all his feathers, so I left the bird out for now.
Super Bowl Sunday. Packers or Steelers?
Later, Dude.
someone once mentioned "sporadac PH" . Have you ever heard of that? I was told mine is "borderline" or "Pre-PH" ... ever heard of that too? I truly think the docs here don't have a clue. Do I really want to travel hours to see a PH specialist at the point I'm at? Not sure. We'll see. Keep the bird out. Cats and their toys bring laughter like nothing else. Have a great week!! Prettiest uniform wins the superbowl.
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